Understanding Clinical Trials: A Course for Caregivers
This free, virtual course equips caregivers in the rare disease community with the knowledge and confidence to navigate the clinical trial process. Participants learn about trial phases, ethics, safety, patient rights, and what to expect from enrollment through completion, including practical considerations such as time commitment, travel, and communication with care teams.
The course also addresses the emotional realities of trial participation, offering guidance on coping with uncertainty, support if trial endpoints are not met, and preparation for what comes after a clinical trial ends.
Course•By Child Neurology Foundation